August 13, 2009
Middle of the Night
July 16, 2009
Back in the High life Again?
Today I am sitting on a beautiful green mountain top feeling a slight breeze while the smell of wild flowers wafts across my face and blows through my long, thick, curly, blonde hair (hey it’s my daydream!) The white puffy clouds dot the blue sky.
Today is a day of rest and reflection. My family and I have been looking forward to this moment for over nine long dark months. It is a day to peer down off this steep mountain peak and realize how far I have climbed. I am tired. I am thirsty. I have blisters and battle wounds but today, “I made it to this mountain peak and the mountain’s under me.”
We met with Dr. Tricot yesterday. I “aced” my tests and scans! All the results indicate that there are no signs of any active myeloma cells. I am in complete remission!
Now I wish I could dance through the field of daisies like Julie Andrews in the Sound of Music and say this is the end of my journey. It is the end of days and weeks living away from the family. It is the end of aggressive, high dose chemo, and two stem cell transplants but it is not time to retire my hiking boots yet.
I will still be undergoing maintenance therapy for the next year.
This involves four chemo injections a month of Velcade, along with a steriod drug, Dexamethesone, and Thalidomide an “anti-cancer” medication. The Doctor explains that this regimen will kill off the “sleeper cells” lurking in my body and give me the possibilities of a much longer remission.
I haven’t felt “normal” for over a year. I told Dr. Tricot that I would love to go off all the medication for a couple weeks to see what I feel like without any side effects. He laughed and explained in his Belgium accent, “You must remember what our objective is, you haven’t reached the finish line yet, but you are doing everything possible to get there and the rest is out of our hands.”
These words brought me comfort and assurance that this dark, difficult journey for our family has been worth it. That I have scaled this steep, sharp, rocky mountain knowing that I am doing everything I can possibly do to reach the top and to extend and improve my life. The rest is in God’s hands.
I am tired. I am thirsty. I have blisters and battle wounds but today, “I made it to this mountain peak and the mountain’s under me.”
July 08, 2009
Test Day
June 19, 2009
Me and Myeloma facts
June 02, 2009
My Life Preservers
After reading my previous blog, I realized that I had failed to mention one of the greatest blessings in all of this. My parents! I don’t know what we would have done without them. Luckily they live just 20 miles from Huntsman; a true blessing while I am required to be close to the Hospital during testing, treatments and recovery. I can not even imagine how we would have managed without them. Having them live conveniently near the hospital has been wonderful, however they have done so much more than that.
My parents have given me life twice. Once when I was born; the only girl in a family of four boys. (ironically just like the family I am raising) And now they give me life again through the many sacrifices they have made to get me through these last several months.
They raised me in a home filled with love. They taught us life skills I am grateful for now. Both teachers, they worked hard to care for a big family and made sure we knew how to work hard. We spent many happy summers in my favorite place-Star Valley, Wyoming, working and playing in the hay fields and woods.
They have been with me every step of the way. From the moment we found out the plan, they have adjusted their lives to help my family and I manage all of this. My dad bought a new car that would be easier and safer to drive into Salt Lake everyday for appointments and treatments. He made sure it had good snow tires and was heated before I got in during December when I had to be at the hospital by 7am every morning for over a week. My dad has taken turns taking me to appointments-He takes the shorter ones :) and gets things done around the house when my mom is with me.
My parents just bought a trailer home in St. George last year and were anxious to get down their and enjoy it. They put all their plans on hold without a second thought. My dad is one of my life preservers!
My mom has spent her life caring for her children. She cooked, canned, sewed and worked full time. Although she was a 4th grade teacher for many years, I think her second career has been that of a nurse. She has spent countless hours in hospitals over the years attending to the needs of our family with broken bones, health problems, and serious life-threatening accidents. Well her experience comes in handy once again as she takes care of me.
She has spent many, many hours in the waiting room and infusion room by my side. Her life has been completely consumed with me and my needs. She probably knows more about my disease than I do as she researches and stays on top of what I should be doing each step of the way. She spent everyday of my ten day hospital stay with me even though I wasn’t good company and manages to whip up healthy meals for me even though I could only take a few bites. My mother has given her life to give me a second life. She is one of my life preservers!
How can I ever express the love and gratitude I feel for my parents. I ask the Lord to bless them everyday for the sacrifices they make on my behalf, and hope that I can be there for them whenever they may need my help.
I Love you both and am so grateful to be your daughter. Thank you for all you have done for me now and throughout my life. You have supported me every step of the way. You are my life preservers in every sense of the word. Love, your daughter, Kristine
May 24, 2009
Doggy Paddlin'
May 20, 2009
One day at a time
May 15, 2009
Preschool Plug
May 08, 2009
99.9%
May 03, 2009
I Can See Clearly Now
April 27, 2009
Faith Will Get Us Through
April 22, 2009
Another Tough Day On The Mountain
April 21, 2009
We Can Feel Your Prayers
April 17, 2009
The Climb
Early Thursday morning I woke up and seriously considered calling everything off. “I think I will just just sit down in the dirt and slide down this mountain on my butt!” I did not want to walk into that hospital and start another round of chemo! This is seriously not very fun anymore!! The first time around I did not know what to expect, now I know too much. But I guess there is no way out of this--but up so it is time to start climbing again.
I had several high dose rounds of chemo on Thursday and then went in this morning for my second stem cell transplant. The procedure is fairly simple. After receiving a short saline IV, I was given a transfusion of my previously stored stem cells, then two more hours of saline. The cells are stored in a DMSO solution as a preservative. The minute it hits your body, you get a metalic, garlicky taste in your mouth and an interesting odor-which my family did not enjoy.
My husband, my daughter, and one of my sons came with me to celebrate this second “Stem Cell Birthday.” It will take several days for the cells to begin working, and my body is beginning to slow down. This afternoon my face, hands, and feet began to swell. I look like a pink lobster.
I have probably had cancer for several years. I have know about it for over five months. I am still in shock about it everyday. This mountain is very steep!! and some days this climb is on my knees, but I still have lots of life to live and enjoy, lots of family and friends to love, and many lessons and blessings to receive from my Savior.
April 14, 2009
The Big Week
Happy Easter
Sorry I am a few days late. I was busy enjoying a great weekend and feeling somewhat normal. My treatment schedule was put off from Monday April 6th to Monday the 13th due to a bad cold. It took the whole week to feel better. Saturday I got the family rounded up to clean the house, helped my daughter sew a dress, and helped prepare food for easter dinner. I made rolls, a fruit salad and Great Grandma's famous Easter Chocolate Roll for desert. My husband took over the ham and potatoes. It felt so good to feel so good! Sunday I went to church and listened to my son give a talk in Sacrament meeting. Then my parents came down for dinner and drove me back to their house to begin treatment on Monday morning. Here we go again!
April 06, 2009
Good News, Bad News
April 02, 2009
Gearing Up for Round Two
A God of Miracles!
On this Easter morning, I honor my Savior who has guided my life again, and again. Only He knows the all of the challenges I have faced, t...
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Happy Canceversary to me! It has been 10 years today since I was diagnosed with Multiple Myeloma! My treatment included high doses of chem...