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Showing posts from June, 2011

A BEaUtifUL MeSs

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Family Easter Egg Hunt. That cute little bunny is my grand daughter. How can I explain all that has gone on in the past several months?  Life just seems to roll along and sometimes I can roll along with it and keep up with the daily normalcy of life.  Other times I have been the rock that silently lies still and immovable as life swirls too swiftly for me to catch up. So How am I doing? I am trying to make it through the last three months of maintenance therapy.  It seems to be getting harder.  I have been on 20 mg of Dexamethasone every three weeks.  I take it on days 1-4.  I used to get a little energy on those days but thats seems to be dwindling.   From about day 5 to to 14 I get severe fatigue, achy muscles, and pain.  I slowly work my way back up and feel pretty good for a few days and then start all over again on day 21.  If all tests are good I should be off of any treatment by September.  If I can hold out that long.  It is SO tempting to just call it quits!  I have too m