Showing posts from October, 2009

Happy Cancer Day

One year ago today I was diagnosed with cancer. This morning my husband wished me "Happy Cancer Day." Wow what a year! Who would have thought a year ago that: I could give myself a shot (a blood thinner) every night without even flinching. That I would lose all my hair... twice. That I would finally get down below my "goal weight".....and then gain it all back. That I can lay down during the morning, afternoon, and evening... and not fill guilty. That I can impress family and friends with a list a page long of all the medications I take. That I know more about cancer than anyone should have to. Who would have thought a year ago that I would even know what multiple myeloma is. Wow what a year! We celebrated by meeting with my Doctor at Huntsman. Last week I had an MRI, blood work, and another biopsy. Today we went over the results. Everything looks good and "my numbers" are where they are supposed to be. We celebrated by going to lunch. Maybe


Welcome to my rollercoaster.    (that's me and my son on the 2nd row in the first picture and another son and my husband on the first row in the 2nd pic. Yea for Disneyland!) I am on maintenance therapy for a whole year!!! I am just finishing up the third cycle-nine more to go! This consists of a quick IV push of Velcade on days 1 and 4 and 15 and 18. It's basically chemo two times every other week. I am also on Dexamethasone-a steriod during those weeks and Thalidomide everyday.   Some of you may remember hearing about this drug.  It was used in Europe in the 50's and early 60's as an anti nausea drug for pregnant women.  It then cost less than $2.00 a pill. It caused terrible birth defects and was taken off the market.  About twenty years ago it was discovered that it kills myeloma cells. It now costs over $5100 a month-thank you insurance!  I have to take a test and survey every month to assure the drug maker-Celegene that I am not pregnant-fun!     All of these dr