HOW TO MOVE A MOUNTAIN
Learning to Navigate the Challenges of Multiple Myeloma and Life!
November 03, 2024
Sixteen Years-Life Goes On
November 06, 2022
Fourteenth Year Cancerversary
My husband and I at my 40th High School Reunion. Am I seriously that old?!
It has been fourteen years since I was diagnosed with Multiple Myeloma. The remarkable fact is that I am so busy living my life that the remarkable date passed without a thought. I go weeks now without even thinking about the years of intense pain, treatment, side effects, and the mental battles I faced as I examined my options and the genuine possibility that m life would be cut short.
February 20, 2022
What I Needed Someone to Tell Me
I have been thinking what I would have wanted someone to tell me when I was first diagnosed. I had many family, and friends running to support me in the beginning. I was somewhat embarrassed to have so much attention focused on me. I didn't want to go anywhere for fear I would see someone I know and then have to explain everything and keep from breaking down. It took too much energy to be strong for everyone else.
What I really needed was for someone to come to me who had already been in my shoes. Although well meaning, I just didn't want to hear about someone's "cousin who died from the same cancer." (Yes that happened, in front of my children!) I desperately needed to hear from someone who had survived! Who walked "through the valley of the shadow of death," and lived! I wanted someone to tell me that they did it and I could too. That it is possible that the prognosis, and Google, and research, and statistics, Do Not have to apply to me! That believing that you will survive may help you do just that!
I wanted someone to be honest with me. To tell me it is going to be tough but spare me from all the gory details unless I ask specifically about them. To tell me some blessings that came through this trial and explain to me how to replace the constant fears with consistent faith.
I needed someone to help me figure out how to drop my roles as a wife and mother and focus solely on preparing for the battle of my life. Learning how to step back and let others take over the daily tasks of family life.
I needed someone to tell me that a cancer diagnosis is an opportunity to seek and rely on faith in God. That He will send angels here on earth to carry and support you, and heavenly angels to bare you up in your dark days and painful nights. And that peace can return to your life whether you are healed or not.
I am in a place now where I can be that messenger to people I know and to others I have never met. I hope that you may find an increase in faith and peace through your journey.
October 27, 2021
July 16, 2021
A Piece of Heaven
For the first time in 34 years my husband and I are both empty nesters! We are getting used to this new stage of life and have been on quite a few little trips this summer. Our favorite is the weekends we spend in Star Valley, Wyoming. In fact thats where I am now sitting in a camp chair listening to the birds chirp and the breeze blow through the pine and aspen trees. I wish I could bottle up the mountain air and take it home with me! Our kids and their familes come up often and we love watching the grandkids play with their cousins in the woods-just like I did as a child. I feel so blessed to be able to enjoy this little piece of heaven. My great grandparents helped settle this area. My grandfather was a sheep rancher with hundreds of acres of property, and my grandmother taught school. They left an amazing legacy to their 3 daughters one of whom is my mother. Their hard work, love of family, this land, and faith in God has strengthened me many times throughout my life.
April 11, 2021
November 20, 2020
#GiveThanks
Its been 12 Years since I was diagnosed with Multiple Myeloma! Today I GIVE THANKS for my life and the many more years I have been given. A few years ago I could not even dare to dream that I would not only live this long, but be healthy and strong.
I owe my gratitude to my Savior who blesses me each day with good health, an amazing family, and the Gospel of Jesus Christ which gives me peace and hope.
March 15, 2020
Finding Peace this Sunday
November 10, 2019
A Journey of a Thousand Miles Begins with the First Step"
The chance to join my family as a black belt finally became a reality! |
So grateful for the love and support from my family! |
October 28, 2018
10th Cancerversary!
My treatment included high doses of chemotherapy, Melphalan, Velcade, Thalidomide, Revelomid, and two stem cell transplants. This kicked me down to "barely breathing," but kicked Myeloma into a "Complete Response." I was on Maintenance medication for about 4 years and have slowly regained my strength since then. I continue to do blood tests and lab work every three months and scans and a bone marrow biopsy once a year.
It was wonderful to have my whole family (minus two babies) together reflecting on this journey and rejoicing in LIFE!
34 years together and counting!!!! |
We wore stickers saying, "Kelly's Kicking Cancer since 2008" |
So the big question is, am I cured? Unfortunately there is no cure YET for Myeloma but good things are happening in the Myeloma research field and also in patient research.
Life is Good!
Healthtree.org is a website and patient research platform that was created by a Myeloma patient and her husband right here in Utah. Through patients sharing their specific types of mm and treatments with other myeloma patients and doctors around the world, researchers are able to find what works and why it works and then treat patients with the right treatment for their specific type of Myeloma. This simple, free website uses the power of the internet to share useful information with each other instead of trying to reinvent the wheel with each new patient.
October 29, 2016
Eight Years!
It has been eight years ago today since I was diagnosed with Multiple Myeloma.
October 29, 2008 will forever be etched in my memory as the day that changed the course of my life.
On the one hand, it was as if a bomb had exploded, taking away my health, shredding my future, and destroying my hope. But on the other hand this is the day that my journey began, and I cannot erase the dark painful days without giving up the miracles and blessings that have come about while climbing this Myeloma Mountain.
It has been eight years! Four years longer than my first prognosis.
I am healthy and strong! My lab results show no signs of Myeloma. Is it gone? Will it come back? I don't know. But I am going to ride this wave as long as possible and maybe mm won't crash back into my life again. I can't ask the "what if's" anymore. Instead today is a time to reflect and share some of the miracles and blessings I have received during this journey.
Spending time with my family in Star Valley, Wyoming (7 new family members since diagnosis, and a new daughter in law, and a grand baby--both coming in May.) |
Spencer, my youngest, just starting his Senior year of High School! He was 10 when I was diagnosed:( |
Trent and Lys are getting married in May. Aren't they cute! |
March 13, 2016
This is what I believe!
To my father, my brother, my mother-in-law, my grandparents, and many other family members and friends. This is what I believe!
August 05, 2015
On Top Of The World!
I had no idea how much this hike would affect me when I started out early Tuesday morning.
Gotta love it. It makes for an interesting day to what has become my three/six month routine.
December 26, 2014
Merry Christmas!
May 27, 2012
Great Views
The sun has been shining over the past several weeks and
Even Tabitha helped water the tomatoes. We planted 300 tomato plants as well as onions, peppers, watermelons, catalops, beets, peas, radishes, beans,raspberries and I'm sure there are more I have forgotten. My son-in-law and two sons plan on selling most of the produce at the local Farmer's Market. |
Kirby and Zoey enjoyed the outdoors too, |
Here are a "few good men outstanding in their field." |
Eggs anyone? |
What a great life I have! The views from the top of my mountain are amazing! I am learning to live joyfully in the moment! |
May 06, 2012
Giving In and Giving Up
Sometimes I just get so frustrated with my poor health,
never ending infections and PAIN, that
I just decide to throw it all up.
I mean literally and figuratively!
Lately I have been dealing with nausea from too many antibiotics
resulting in stomach aches and another ulcer.
Also... My liver decided to quit functioning properly.
So a few weeks ago I had a liver biopsy.
The Liver doctor inserted a long needle between the ribs
on my right side and pulled out a sample of tissue to be examined.
(it was not nearly as painful as I had imagined-thank goodness)
It's been over three long anxious weeks and
I still have not received any results.
The nurse did tell me over the phone that it's not likely cancer
from the lab report she read (whew).
But still I must continue to wait! Very frustrating!!
So to sum it all up.
I am sick of being sick!
Yesterday I decided to quit.
Instead of getting out my 2/day pill box filled with antibiotics,
pills for this side effect and another for
the side effect of that side effect,
as well as a host of vitamins and minerals,
I just gave up and threw the box up onto the shelf.
I tore off my pain patch and decided it was all in my head.
Maybe the reason I am always tired, have no appetite and can't sleep
or can't sleep enough is just because of all these stupid drugs!
At 2am I woke up in PAIN.
It hurt from my toes up to my nose. My body was stiff and grating.
I managed to hobble to the bathroom to get a drink. "I can do this,"
I said giving myself a pep talk, I turned my iPod on,
plugged in my ear phones and forced myself to go back to sleep
while listening to my " middle of the night, lull me to sleep music".
It finally worked for a couple hours
until the pain grew and gnawed me awake.
I lay there gathering my thoughts and then
finally my strength to do what I had to do.
I hobbled back to the bathroom pulled down my pill box,
and took the few most important pills including a pain pill.
I grabbed a new pain patch and slapped it on my back.
I gave up and gave in.
I gave up the idea that my poor health is all in my head.
That the pain is just imagined,
and that because I am in cancer remission
the effects of fighting it have disappeared.
They haven't.
And I gave in to the fact that I can not do this on my own.
That (as my husband says) "It is what it is."
My body has pain and my body is still trying to heal.
I can not run away from that fact.
I gave my pain and my problems up in prayer.
I pleaded for strength and courage to continue.
I need medication. I need faith.
I need strength from my Father in Heaven.
When I quit fighting against the pain, and
give in to what I must do.
When I give up my pride in trying to do it all my own,
and lean on the Lord for help,
I gather the strength to continue
climbing this multiple myeloma mountain.
Here is one of my favorite hymns.
"How Firm a Foundation"
3. Fear not, I am with thee; oh, be not dismayed,
For I am thy God and will still give thee aid.
I’ll strengthen thee, help thee, and cause thee to stand,
Upheld by my righteous, upheld by my righteous,
Upheld by my righteous, omnipotent hand.
Sixteen Years-Life Goes On
Last Monday, October 28th, was just another day. I spent a busy day at work teaching High Schoolers. It is a race everyday to get everything...
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JUST BREATHE Last Monday was my six-month check-up at the Huntsman Cancer Institute. I do a lot of breathing that day. I ta...